SIANNE Hester and husband Aaron endured all parents’ worst nightmare when they lost their beautiful daughter Lily, 8, to liver cancer in 2014.
Now, the Ascot Vale mum has a diagnosis of terminal cancer herself.
However, determined to do all they can to raise awareness and research funds for childhood cancer, the pair has kickstarted the Live for Lily foundation.
On Tuesday, Aaron and a group of friends started a six-day 800km ride from Coonawarra to Carlton.
Sons Oliver, 9, and Archer, 6, will be part of the support crew, as will Sianne, who will continue treatment during the ride.
“We don’t have Lil, but we have Lil’s foundation now, and it stands for everything that Lil was about,” Aaron said.
The PE teacher wants parents to have greater awareness of childhood cancers and “to listen to their kids” when they complain about ailments such as a sore tummy.
“I had no idea cancer was the biggest killer of kids in Australia. I don’t want others to go through that … it tears your heart out.”
Sianne said: “ Lily was a caring little girl who wanted to help others. She would be so proud this is happening.”